Protester seeks help for carers

Carer Sandra Jones protests in the Octagon, Dunedin, yesterday for better recognition and support for family carers. Photo by Peter McIntosh.
Carer Sandra Jones protests in the Octagon, Dunedin, yesterday for better recognition and support for family carers. Photo by Peter McIntosh.
For love, Sandra Jones donned a fluorescent orange suit and protested for the rights of family carers in the Octagon, Dunedin, yesterday.

For love, she wakes at 7am each day to toilet, shower, dress, feed and care for of her 36-year-old daughter, Kerry.

For love, she and her husband sacrifice holidays, outings and financial security.

But Mrs Jones is fed up with being forced - along with thousands of others - to care for family members simply for love as the Government refuses to acknowledge the unpaid work they do.

"I love her, but it's exhausting. It's like having a child for ever," she said.

She works three days a week to supplement her husband's income, but only during the school term when Kerry attends adult classes for the disabled.

More than 420,000 New Zealanders care for ill, frail, injured or disabled family members and friends, performing humane and necessary work with an economic value of more then $7 billion.

A group of parents won a recent court case seeking reimbursement to care for their adult children, but the Government is appealing the decision.

Health Minister Tony Ryall has said paying parents to care for their disabled children would cost $640 million a year, a sum the nation could not afford, while independent assessments put the figure at $17 million, she said.

"I'm sick of this Government. They are paying millions to appeal this decision and it's crazy."

Mrs Jones believed $200 a week would suffice to "give me that freedom".

"I don't know if I would actually claim it, but I think other parents should be allowed to.

"It's not a case of us actually wanting the money; it's a case of being able to have a break," she said.

During her protest, she distributed postcards for the We Care carers campaign lobbying Prime Minister John Key to provide better recognition and support for family carers.

ellie.constantine@odt.co.nz

 

Community spirit

I can only imagine how hard it must be to have to look after a disabled adult child. As someone who has no children, even I feel sympathetic. As a taxpayer I don't begrudge some money being spent, particularly on facilities to help people like this out. Its not about passing the buck - people like this need help. Do you expect people to work and save or get private insurance for the contingency they'll have a seriously disabled child? No-one would have children.

It sounds like when the school is operating things are much better for this parent. Why not fund that to operate all year round? This is small bucks compared to the $3 billion-odd Working For Families costs. No one could envy the position of these caregivers and it is mean spirited to begrudge them some help. To save the public coffers we should be looking to policies that have led to spiralling property costs creating imaginary wealth - particularly for the baby boomers. If this were sorted out there would be a lot less needed for Working For Families and we could save real money, have lower taxation and improved social justice.

Caregiver

That's a wee bit harsh. If more money was given to caregivers more readily it would have benefits in other areas of healthcare as well, such as supported accommodation.

I for one am happy to pay the buck that you feel is being passed, or better yet pay some suitable unemployed  people to do some care work, leaving those who are stuck at home caring able to go out and earn. I sincerely hope that you are never in the position to have to care for family or worse still needing the care your self.

(I was a carer for my partner for over 10 years, luckly we can now both work and enjoy life) 

Caregiver

Caring for love - so she should. Children of all ages are for life.  Why should taxpayers fork out $200 a week to give Mrs Jones 'freedom' from looking after her own child?  Not the nation's child. Her child. In sickness and health. For life. Not passing the buck to others.

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