Colour Run to aid EB support group

Organisers of The Terrace School's first Colour Run (from left) Milla Druce, Tait Payne and his...
Organisers of The Terrace School's first Colour Run (from left) Milla Druce, Tait Payne and his sister Xanthe Payne will use the event to raise funds for Debra NZ, a support group for people who have epidermolysis bullosa, a condition Tait suffers from. Photo: Alexia Johnston
Bumps and scrapes are a part of childhood but for Alexandra youngster Tait Payne, having "butterfly skin" means they take a far greater toll on him.

The 8-year-old, who attends The Terrace School Alexandra, was diagnosed with epidermolysis bullosa (EB) at the age of 2.

Also known as butterfly skin, the rare condition makes skin so fragile it can tear or blister at the slightest touch.

"If I fall over, like hard on the ground, I might get a blister. If I skid on the ground my whole skin [in the affected area] comes off and blisters," Tait said.

When that happens he applies "pink stuff" - a medical treatment - to the affected area to take the pain away.

He admits he has to be "very careful".

"Everywhere I have to be careful - even if I'm on walks," he said.

"When I'm riding my bike I have to wear special gloves with padding on them so if I hit the ground it won't do that much [damage to my skin]."

His condition means he has to attend two appointments at Starship Hospital each year.

He also attends camps with Debra NZ, a support group for families who have children with the condition.

To give back to the group, Tait is helping plan his school's first Colour Run, with the aim of raising funds for Debra NZ.

Helping him organise the event, taking place at the school on October 25, are fellow Terrace School pupils Milla Druce (12) and Xanthe Payne (11), Tait's sister.

Xanthe said after looking into hosting a Colour Run they realised proceeds could be raised for a group.

"We decided to do Debra NZ because someone in our school and community is affected by it," Xanthe said.

"And, since it's Xanthe's brother, it kind of made sense," Milla said.


 

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